Usually, a blog is made up of the blogger’s own work. But for this posting, I’d like to make an exception. Thilde Jensen was a New York City photographer when she was exposed to a number of toxicants and subsequently developed multiple chemical sensitivity. It got so bad she fled the city and for two years had to live outside in the fresh, clean air. Through a recent experimental neural retraining program, she is now able to go out into the world without a respirator, and has resumed her life as a photographer. This is her story, and the story of others she has met who face the isolation and debility of multiple chemical sensitivity… as told through her camera’s lens.
One Response to “Canaries: A Thilde Jensen Photo Essay in the New York Times”
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I have been under treatment for 7 yrs at a “specialized” clinic in TX, initially suffering severe arsenic poisoning and anaphylaxis to “the world”… altho improved re: arsenic, the world is still a daily threat & MCS/anaphylaxis has worsened. I have found most drs, even in MCS/toxins fields can’t see outside their boxes. Past 10 mos, even tho’ at request of VP of one of their hospitals, was turned down as a patient by numerous Harvard Medical Sch/hosps doctors as “too complex a case.” Am a retired psychologist & have researched much…am one of those victims in my home w/extremely restricted life. I believe MCS are symptoms of a systemic illness within the immune system but possibly triggered by other systems/illnesses and found it affects more females than males. I believe mast cells are significant in MCS/related illnesses (many MCS patients often end up w/cancer). Personally, it is now suspected that I have “systemic mastocytosis” (an “orphan disease” recognized in 1959 — interesting coincidence w/large expansion in world-wide chemical use/experiments) which I now believe ALL MCS people should be tested for..this also can go into cancer but, if caught early (w/simple tests) is usually completely treatable. Am in process of posssibly moving back to Colorado/Ariz where I felt better, but would like to talk with Thilde Jensen (or others interested in this phenomenon) because I believe it is & will be increasing exponentially over next 10+ yrs…affecting millions of all ages around the world. I think there is an even larger story about people like us whose symptoms are overlooked/misdiagnosed or even if recognized as MCS, have various complexities adding to the differences which make diagnosis/treatments even more difficult. Among us, we are spending millions of dollars trying to find answers (mostly thru our own/each others’ research/experiences), for treatment/diagnosis before we are completely incapacitated &/or die. We are definitely outside the mainstream “edge” of Eastern/Western medicine. I have a small group of us across country who exchange info (including traditional, alternative, folkloric medicine) & am always looking for more to join us. I think we have helped each other more than doctors have. Please contact me email above. Thank you.
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I have been under treatment for 7 yrs at a “specialized” clinic in TX, initially suffering severe arsenic poisoning and anaphylaxis to “the world”… altho improved re: arsenic, the world is still a daily threat & MCS/anaphylaxis has worsened. I have found most drs, even in MCS/toxins fields can’t see outside their boxes. Past 10 mos, even tho’ at request of VP of one of their hospitals, was turned down as a patient by numerous Harvard Medical Sch/hosps doctors as “too complex a case.” Am a retired psychologist & have researched much…am one of those victims in my home w/extremely restricted life. I believe MCS are symptoms of a systemic illness within the immune system but possibly triggered by other systems/illnesses and found it affects more females than males. I believe mast cells are significant in MCS/related illnesses (many MCS patients often end up w/cancer). Personally, it is now suspected that I have “systemic mastocytosis” (an “orphan disease” recognized in 1959 — interesting coincidence w/large expansion in world-wide chemical use/experiments) which I now believe ALL MCS people should be tested for..this also can go into cancer but, if caught early (w/simple tests) is usually completely treatable. Am in process of posssibly moving back to Colorado/Ariz where I felt better, but would like to talk with Thilde Jensen (or others interested in this phenomenon) because I believe it is & will be increasing exponentially over next 10+ yrs…affecting millions of all ages around the world. I think there is an even larger story about people like us whose symptoms are overlooked/misdiagnosed or even if recognized as MCS, have various complexities adding to the differences which make diagnosis/treatments even more difficult. Among us, we are spending millions of dollars trying to find answers (mostly thru our own/each others’ research/experiences), for treatment/diagnosis before we are completely incapacitated &/or die. We are definitely outside the mainstream “edge” of Eastern/Western medicine. I have a small group of us across country who exchange info (including traditional, alternative, folkloric medicine) & am always looking for more to join us. I think we have helped each other more than doctors have. Please contact me email above. Thank you.
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