Comments for One Canary Sings http://www.jenniferlunden.com Notes from an Industrialized Body Sun, 08 Jan 2012 22:29:39 -0600 http://wordpress.org/?v=2.8.5 hourly 1 Comment on Exposure by Julie Silverman http://www.jenniferlunden.com/184/comment-page-1/#comment-765 Julie Silverman Sun, 08 Jan 2012 22:29:39 +0000 http://www.jenniferlunden.com/184/#comment-765 How true. I choose not to go out today or do much of anything because I already have hives. I am fatigued from slowly coming off of steroids for my hives. Yes the shoes.... I had a pair of sneakers for 3 years and they were torn. It took me 8 months to chance going to Roys's shoe shop to get them repaired. I finally went to the shop and told them a bit about my hives and asked if they could sew them while I waited. They said yes and I was thrilled. I decided it was best for me to get out of the shop and wait in the fresh air. It cost me $8.oo which I thought was pretty high for doing a 3 minute , 1/4 inch stitch but I knew I would have paid anything. That is another part of having CFS, we have to pay more for less. I have been trying on shoes for over 3 three years now and cannot find a pair that doesn't give me contact dermatitis or pressure hives. I did find a boot at Beans that had no outgasing problems at all. So here I sit with a boot and a sneaker in their original boxes costing over one hundred and forty dollars. I don't have the energy to try them out or air them out today. Lamey shoe store lets you wear them only in your home to try them out. Now that isn't the best help is it. I want to throw the sneaker in the wash but if I did I wouldn't be able to return them if they caused me any problems. Some days I don't want to bother getting dressed because it is so depressing to have clothing cause hives and have to re-wash by hand causing hives to my hands. As I write this story I have to put a pillow under the computer so I will not get a physical pressure hive on my lap. And people wonder why we are so tired after doing what some others might think of as "nothing much". Thank you Lunden How true. I choose not to go out today or do much of anything because I already have hives. I am fatigued from slowly coming off of steroids for my hives.

Yes the shoes…. I had a pair of sneakers for 3 years and they were torn. It took me 8 months to chance going to Roys’s shoe shop to get them repaired. I finally went to the shop and told them a bit about my hives and asked if they could sew them while I waited. They said yes and I was thrilled. I decided it was best for me to get out of the shop and wait in the fresh air. It cost me $8.oo which I thought was pretty high for doing a 3 minute , 1/4 inch stitch but I knew I would have paid anything. That is another part of having CFS, we have to pay more for less.

I have been trying on shoes for over 3 three years now and cannot find a pair that doesn’t give me contact dermatitis or pressure hives. I did find a boot at Beans that had no outgasing problems at all.

So here I sit with a boot and a sneaker in their original boxes costing over one hundred and forty dollars. I don’t have the energy to try them out or air them out today. Lamey shoe store lets you wear them only in your home to try them out. Now that isn’t the best help is it. I want to throw the sneaker in the wash but if I did I wouldn’t be able to return them if they caused me any problems. Some days I don’t want to bother getting dressed because it is so depressing to have clothing cause hives and have to re-wash by hand causing hives to my hands.

As I write this story I have to put a pillow under the computer so I will not get a physical pressure hive on my lap. And people wonder why we are so tired after doing what some others might think of as “nothing much”.

Thank you Lunden

]]> Comment on Canaries: A Thilde Jensen Photo Essay in the New York Times by Arlene Seal http://www.jenniferlunden.com/canaries-a-thilde-jensen-photo-essay-in-the-new-york-times/comment-page-1/#comment-687 Arlene Seal Sat, 29 Oct 2011 19:25:47 +0000 http://www.jenniferlunden.com/?p=148#comment-687 I have been under treatment for 7 yrs at a "specialized" clinic in TX, initially suffering severe arsenic poisoning and anaphylaxis to "the world"... altho improved re: arsenic, the world is still a daily threat & MCS/anaphylaxis has worsened. I have found most drs, even in MCS/toxins fields can't see outside their boxes. Past 10 mos, even tho' at request of VP of one of their hospitals, was turned down as a patient by numerous Harvard Medical Sch/hosps doctors as "too complex a case." Am a retired psychologist & have researched much...am one of those victims in my home w/extremely restricted life. I believe MCS are symptoms of a systemic illness within the immune system but possibly triggered by other systems/illnesses and found it affects more females than males. I believe mast cells are significant in MCS/related illnesses (many MCS patients often end up w/cancer). Personally, it is now suspected that I have "systemic mastocytosis" (an "orphan disease" recognized in 1959 -- interesting coincidence w/large expansion in world-wide chemical use/experiments) which I now believe ALL MCS people should be tested for..this also can go into cancer but, if caught early (w/simple tests) is usually completely treatable. Am in process of posssibly moving back to Colorado/Ariz where I felt better, but would like to talk with Thilde Jensen (or others interested in this phenomenon) because I believe it is & will be increasing exponentially over next 10+ yrs...affecting millions of all ages around the world. I think there is an even larger story about people like us whose symptoms are overlooked/misdiagnosed or even if recognized as MCS, have various complexities adding to the differences which make diagnosis/treatments even more difficult. Among us, we are spending millions of dollars trying to find answers (mostly thru our own/each others' research/experiences), for treatment/diagnosis before we are completely incapacitated &/or die. We are definitely outside the mainstream "edge" of Eastern/Western medicine. I have a small group of us across country who exchange info (including traditional, alternative, folkloric medicine) & am always looking for more to join us. I think we have helped each other more than doctors have. Please contact me email above. Thank you. I have been under treatment for 7 yrs at a “specialized” clinic in TX, initially suffering severe arsenic poisoning and anaphylaxis to “the world”… altho improved re: arsenic, the world is still a daily threat & MCS/anaphylaxis has worsened. I have found most drs, even in MCS/toxins fields can’t see outside their boxes. Past 10 mos, even tho’ at request of VP of one of their hospitals, was turned down as a patient by numerous Harvard Medical Sch/hosps doctors as “too complex a case.” Am a retired psychologist & have researched much…am one of those victims in my home w/extremely restricted life. I believe MCS are symptoms of a systemic illness within the immune system but possibly triggered by other systems/illnesses and found it affects more females than males. I believe mast cells are significant in MCS/related illnesses (many MCS patients often end up w/cancer). Personally, it is now suspected that I have “systemic mastocytosis” (an “orphan disease” recognized in 1959 — interesting coincidence w/large expansion in world-wide chemical use/experiments) which I now believe ALL MCS people should be tested for..this also can go into cancer but, if caught early (w/simple tests) is usually completely treatable. Am in process of posssibly moving back to Colorado/Ariz where I felt better, but would like to talk with Thilde Jensen (or others interested in this phenomenon) because I believe it is & will be increasing exponentially over next 10+ yrs…affecting millions of all ages around the world. I think there is an even larger story about people like us whose symptoms are overlooked/misdiagnosed or even if recognized as MCS, have various complexities adding to the differences which make diagnosis/treatments even more difficult. Among us, we are spending millions of dollars trying to find answers (mostly thru our own/each others’ research/experiences), for treatment/diagnosis before we are completely incapacitated &/or die. We are definitely outside the mainstream “edge” of Eastern/Western medicine. I have a small group of us across country who exchange info (including traditional, alternative, folkloric medicine) & am always looking for more to join us. I think we have helped each other more than doctors have. Please contact me email above. Thank you.

]]> Comment on Little Lead Hens by Jennifer Lunden http://www.jenniferlunden.com/little-lead-hens/comment-page-1/#comment-631 Jennifer Lunden Thu, 22 Sep 2011 19:30:00 +0000 http://www.jenniferlunden.com/?p=113#comment-631 Sadly, Erin, I have been unable to locate those test results, and I don't remember the ppm of lead. Sorry. I believe our good news is due to the fact that the back of our house, where the pen is, was added on later, after lead was banned. Good luck with your test! Sadly, Erin, I have been unable to locate those test results, and I don’t remember the ppm of lead. Sorry. I believe our good news is due to the fact that the back of our house, where the pen is, was added on later, after lead was banned. Good luck with your test!

]]> Comment on Little Lead Hens by Erin G. http://www.jenniferlunden.com/little-lead-hens/comment-page-1/#comment-630 Erin G. Thu, 22 Sep 2011 17:53:03 +0000 http://www.jenniferlunden.com/?p=113#comment-630 I've found myself in a similar situation. Just sent soil samples out today. This is the first bit of solid good news I've found so far. Do you recall what you ppm of lead is in your coop soil? I’ve found myself in a similar situation. Just sent soil samples out today. This is the first bit of solid good news I’ve found so far. Do you recall what you ppm of lead is in your coop soil?

]]> Comment on I know the truth; I know it in my body by Tangled | Natural Presence http://www.jenniferlunden.com/i-know-the-truth-i-know-it-in-my-body/comment-page-1/#comment-625 Tangled | Natural Presence Tue, 20 Sep 2011 00:00:00 +0000 http://www.jenniferlunden.com/?p=86#comment-625 [...] but are trapping our innocents: children and other vulnerable humans. The important work of Jennifer Lunden, Sandra Steingraber, and others in revealing this tangled web of toxicity has recently been [...] [...] but are trapping our innocents: children and other vulnerable humans. The important work of Jennifer Lunden, Sandra Steingraber, and others in revealing this tangled web of toxicity has recently been [...]

]]> Comment on Little Lead Hens by Jennifer Lunden http://www.jenniferlunden.com/little-lead-hens/comment-page-1/#comment-496 Jennifer Lunden Fri, 24 Jun 2011 12:20:28 +0000 http://www.jenniferlunden.com/?p=113#comment-496 It came as a huge relief that the eggs had zero evidence of lead. Our chickens are unleaded! It came as a huge relief that the eggs had zero evidence of lead. Our chickens are unleaded!

]]> Comment on Little Lead Hens by Lisa D. http://www.jenniferlunden.com/little-lead-hens/comment-page-1/#comment-495 Lisa D. Fri, 24 Jun 2011 03:46:26 +0000 http://www.jenniferlunden.com/?p=113#comment-495 Great piece, Lunden! I had 3 chickens awhile back. Named one Bess after my grandmother! I really want to know what the results of the egg test were. Great piece, Lunden! I had 3 chickens awhile back. Named one Bess after my grandmother! I really want to know what the results of the egg test were.

]]> Comment on Little Lead Hens by DeAnna Satre http://www.jenniferlunden.com/little-lead-hens/comment-page-1/#comment-493 DeAnna Satre Thu, 23 Jun 2011 15:27:43 +0000 http://www.jenniferlunden.com/?p=113#comment-493 Great essay, Jenn. I love how you weave domestic life with political life. But I want to know how it turned out! Was there lead in the eggs, or not? Great essay, Jenn. I love how you weave domestic life with political life. But I want to know how it turned out! Was there lead in the eggs, or not?

]]> Comment on This Canary Has Something to Say by Julie Silverman http://www.jenniferlunden.com/this-canary-has-something-to-say/comment-page-1/#comment-490 Julie Silverman Tue, 21 Jun 2011 04:03:53 +0000 http://www.jenniferlunden.com/?p=97#comment-490 Write your message or comment here. Lunden I want to thank you for sharing our story and the serious nature of having CSI. You have given so much of your time to help everyone. I appreciate you. Julie Write your message or comment here.
Lunden I want to thank you for sharing our story and the serious nature of having CSI. You have given so much of your time to help everyone. I appreciate you.
Julie

]]> Comment on This Canary Has Something to Say by Nancy Cook http://www.jenniferlunden.com/this-canary-has-something-to-say/comment-page-1/#comment-489 Nancy Cook Mon, 20 Jun 2011 00:59:13 +0000 http://www.jenniferlunden.com/?p=97#comment-489 That was a very good, interesting interview, Jen. Nancy That was a very good, interesting interview, Jen.
Nancy

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